Will Schuller, who has Lambert-Eaton Myasthenic Syndrome.
Credit: NBC News
When Will Schuller was an 18-year-old senior in high school in Overland Park, Kansas, something puzzling was happening. He was “big into running at the time” and seemingly in good health, but his mile time kept increasing.
“I was getting much slower and slower times,” Will, who is a now a senior at the University of Tulsa studying mechanical engineering, told NBC News on Thursday. Eventually, he said, it got the point that within weeks he “couldn’t run even half the distance.”
From there, it only got worse. Will struggled to walk from the school parking lot to his classes, and he couldn’t exercise.
“Everyone knew I was this fit guy, and in just a matter of a month you see me struggling to walk from one side of the hallway to the other,” he said. “My sister would have to piggyback me up the stairs.” At that point, Will’s parents had to pull him out of school.
It took about six weeks […]
The price of that drug is hard to believe. It is more than I have made in my long hard-working lifetime, and I am retired and in my 70’s.