The payment statement that Danielle and Jonathan Foltz received from the pharmacy for one vial of Acthar for their son Trevor.
Credit: Kayana Szymczak/CNN
NEWPORT, RHODE ISLAND — Trevor Foltz splashes in the pool in his grandparents’ backyard. His brother and sister join in the fun, as does their father.
Their mother, Danielle, watches from a nearby lawn chair. She’s like a hawk, keeping a close eye on Trevor and the rest of her brood.
It was 10 years ago in this backyard when a similar moment of revelry was shattered. Trevor, then a toddler, was running around, having the time of his life, his mom keeping steady watch.
Trevor suddenly came over, placed his hand on her knee and looked directly into her eyes. He tried to speak but couldn’t say a word. Then his head twitched ever so slightly to the right. Their gazes locked. Mom’s heart wrenched.
It was so mild that Danielle told herself it must have been her imagination. She didn’t […]
